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From the frontline: What we’ve learned from those most affected by AIDS

An award-winning actor and the president of a non-profit may not seem to have much in common. However, though our professional roots may be quite different, we proudly share the role of HIV/AIDS advocate.

The commemoration of World AIDS Day brings to mind our paths in coming to this calling. Here, too, we share more similarities than differences. It is the lessons we learned traveling to the countries most affected by HIV/AIDS that have made us both passionate about this public health emergency.

{mosads}Because we have seen the ravages of the disease firsthand, it has become much more than numbers for us. Numbers — like 35 million people living with HIV, 70 percent of whom live in sub-Saharan Africa; or 10 to 20 percent, which is how much greater the rate of prevalence for HIV is among vulnerable populations like women and girls or 50 percent, the increase of AIDS-related deaths among adolescents ages 15 – 24 between 2005 and 2012 — are shocking, to be sure. Yet it is not the numbers, but the individual stories behind them that have taught us the most.

In her role as Population Services International (PSI) ambassador, Ashley has traveled the world, meeting people like Kausar. A mother of two in Dharavi, India, Kausar was told by her doctor upon finding out she was HIV-positive, “There are drugs, but you cannot afford them, and you’ll be dead in five years anyway.” Rather than accept this fate, she decided to fight — literally. She slapped the doctor’s face, which landed her in front of a judge. Thankfully, she won the case and went on to continue fighting. She fought not only for herself — getting the necessary medications — but for her entire community, transforming her life and those of the people around her. Kausar now serves as a PSI peer educator. She has managed to not just survive, but to rise above circumstances many of us cannot imagine.

A trip to Zambia, and the opportunity to meet Isther, a young mother of three, had a similarly significant impact on Deb. During her first pregnancy, Isther and her husband tested for HIV and learned that they were both positive. Not that long ago, the story might have ended tragically. Instead, they started treatment, and Isther received services to prevent transmission to her child. Not only was her baby born HIV-negative, but two years later she gave birth to a healthy set of twins. Today, Isther and her family are healthy and happy, and all three children remain HIV-free.

Stories of hope like Kausar and Isther’s have taught us several critical lessons:

Healthcare